We want to grab your attention to this article on the subject Vitiligo Questions and Focused Remedies.
This article aims at answering questions and providing you with information that you will need to understand more about the condition and the available remedies.
Vitiligo UVB phototherapy did not work. Will UVA work? Any case? My nine yr old daughter has the condition on her fingers & ankle.
Also had UVB phototherapy for three months twice a week, a total of 25 treatment. It did not improve much.
The doctor says that she can try UVA but no guarantees. It is not a cheap treatment since it doesn't get covered fully with insurance.
Are there any cases that UVA can improve the spots where UVB did not? Just afraid of spending all the money & time if the chances of getting the pigment back are low.
ANSWER:Unfortunately, your doctor told you the truth:"no guarantees." In addition to just UVA, the treatments work better by adding a psoralen product (PUVA).
However, that also adds to potential side effects; and in a nine yr old, it might be best not to do that.
Was the UVB a "narrow band UVB"? That spectrum seems to work better for vitiligo than regular UVB.
But, on the other hand, the further towards the feet you go, the less likely that any treatment is going to work.
There are case reports of tacrolimus ointment helping to work in this condition, too. You might want to add that to the regimen.
And, one other technique that often works is the surgical route, with small blister induced skin grafts.
For the last eight months, I have a small white spot (around 1 centimeter) on my left leg.
A local skin specialist suggested me to take a course of Leprosy as that patch did not have proper sensation, and skin was very smooth.
So I took a six-month course of Leprosy, and after six months, I have that patch with complete color loss (was pale before), yes I got sensation and texture back. Size is same.
Now some time back I observed one more very light pale patch on my right eyelid.
When I showed this new patch to the doctor, he said that I now have Vitiligo that Leprosy and Vitiligo can come together. Is it TRUE?
Then he gave a Steroid injection, and Tacroz forte 0.1% Ointment to apply on the patch. PLUS UVB light exposure thrice a week.
I am now very much confused as; first I was treated for Leprosy and now Vitiligo. Am I having Vitiligo or some other skin infection? How can I confirm?
Any skin specialist would likely be better than the one you consulted. Empirical treatment for leprosy in the 21st century? No testing?
You could have handled that one without his help. He did give you proper care for vitiligo.
Go to an infectious disease specialist or internal medicine specialist to determine whether you might still have leprosy.
QUESTION:How effective is nb UVB for the condition? As above is narrowband treatment any good on treating vitiligo, how good is the percentage of improvement in specific areas?
Has anyone had success with this and can tell me their story? I have read a lot of good about this working but also a few things suggesting it doesn't work too good.
ANSWER:I've been having UVB treatment for a bit less than a year. Success? It's said that different people react differently to it.
For me, yeah sure I burn now and then, but I have noticed that my patches have been shrinking and a few small spots have gone away.
I still have it and all, but I guess it's working, and I hope it does. I've tried a few creams, but none of them helped me, but like I said different people react differently.
QUESTION:I have had vitiligo for two years. It is still at the primary stage, I guess. I have few small patches in hands, one tiny patch in lip, eyelash, and foot.
But I m very very concerned abt it bcos it is slowly growing. I know the CURE is tricky, but I've heard many people got cured or got the disease HALTED.
I started the allopathy treatment a long ago, but it couldn't stop the spread.Hence, I studied the disease and realized that the problem is somewhere else in the body, maybe immune system or something else.
So, I decided to heal my whole body, each n every part. I have recently started doing the following things-
- Alopathy treatment ( Narroband UVB+ multi vitamin+mineral supplement + ointment-elidel)
- Ayurvedic treatment.
- Proper exercise for 2-3 hours at Gym.
- Controlling diet, taking anti-oxidant rich food as much as possible and avoiding vitamin C and junk food.
- Having Ginkgo Biloba, 120 gm twice a day.
- I don't have any other BAD habit, but I have also given up masturbation for the sake of recovery.
- I will be taking an immuno-booster herbal supplement soon.
- Trying to be stress-free
I wud like to know from the vitiligo patient who HALTED the disease (cure without relapse) - WHAT ELSE SHOULD I DO. Is there anything else I should TRY? How did you cure/halt the disease?
I know you would like for people to share this with you but, you will find that very few sufferers will come out about this disorder.
But I will not let you go without a proper response. Get Well Soon.
In many cases, the disease will go into complete remission, for no known reasons. It sounds like you are doing some excellent things for yourself.
If it continues to progress, you will benefit from the steps that you are taking. If you have a dark complexion PUVA is a treatment for the disorder.
If you have a fair complexion potent sunscreens and cosmetic camouflage may help.
QUESTION:Does skin phototherapy work? [UVA, UVB, UVB-NB]? My specialist has suggested phototherapy for skin hypopigmentation.
I do not have vitiligo but have several hypopigmented areas. I have had them for years and years, and the cause is unknown.
I have searched online, and I see that there are many forms of phototherapy (UVB, narrow-band UVB, and UVA).
My questions are:
- Does phototherapy work?
- Are the results permanent? Or does it revert after phototherapy is stopped?
- Can phototherapy make hypopigmentation worse after the treatment is finished?
- How does it affect your "normal" skin? Does it make you darker? If yes, is this permanent?
- Why did my dermatologist say that my eyes and genitals will need to be covered during treatment?
ANSWER:First of all, it helps really. The results are permanent most of the times. I don't think so, but that you better ask the dermatologist, the healthy skin won't get darker, it's something for your skin to repair itself.
You have to cover the eyes due to the brightness of the light, and you could get blinded or stay blind if you look too much into the light, and for the genitals, that is for safety reasons that nothing will affect your sexual activities.